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Posted by Tina Cornelius (65.144.8.135) on 21:13:10 23/09/04
In Reply to: Update #93 posted by Laura Tubo
Hello Tubo family, We met you as we were getting out of Cinci back in Aug! Thank goodness he is doing so great. I know waiting for those counts to go up is horrible, but sooner than later he will be back home. Aleah finished radiation and it was a breeze for her. The only problem we had was her hair was just starting to come back and now there is a big circle of baldness where she was radiated on the top right of her head!
I check in all the time with Joey's progress and have been cheering for him here in KY. We are getting ready to start Accutane on Oct 1st and are waiting to see if Aleah gets randomized in the monoclonal antibody study. We are also waiting for scan results to see if she is NED yet so we have a big week of results this upcoming week. Keep updating us and we will keep cheering for you. We NB families have such a common bond, it is so good to hear when the kids do well. Keep your spirits up and check out Aleah's site if you haven't in a while. Best Wishes to you on Getting out, tell all in the BMT unit hello for us! Take care.
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